High Pain Day

Hi all! I’m in terrible pain today. My work week was rough and I’m worn out. We’ve had very bad thunderstorms last night and I didn’t get much sleep. I feel like I’m having a bad hangover. The pain meds aren’t even taking the edge off and I’ve been in bed all day. I have to work tomorrow but if I feel like this in the morning I may call off.

Ever since this Corona Virus started, my work has been crazy. I’m an essential worker and my work days are stressful. I’ve been dragging myself to work every day, pain or not. I’m not sure how much longer I can keep this up. I feel like I need to talk to someone. My work offers counseling and since I don’t have a therapist at the moment I may look into that. It’s just all too much on top of my fibromyalgia pain and I can feel my depression getting worse. It just sucks. Thanks for listening!

Posted in Uncategorized | 2 Comments

Nightmare of filling out medical forms

Anyone else gets overwhelmed when filling out medical history forms? This is for my long awaited appointment with a Rheumatologist. Been waiting to get in since last year October and my appointment last week got moved to June because of the Corona virus. My Hematologist is referring me, my lab works shows I could have RA. I hope not! I’m kinda looking forward to this and hopefully get input on my fibro care. So far I’ve only seen my PCP for treatment all these years. April 1st was my 10 year anniversary of being diagnosed with this illnesis and it’s been hell!

Posted in Uncategorized | 1 Comment

Happy Easter

Posted in Uncategorized | Leave a comment

New Year

I wish you all a happy and healthy New Year!

Posted in Uncategorized | Tagged | Leave a comment

Follow up visit

I had a follow up visit with my Hematologist last week. Now my ferritin is way too high along with other lab results that are off. She ia suspecting I have RA, Rheumatoid Arthritis and referred me to a Rheumatologist. Earliest appointment is in April😫

Posted in Anemia, Iron deficiency, my day to day, spoonie, Vitamin B12 deficiency, Waiting Room Blues | Leave a comment

Mammogram

I had my yearly mammogram last week. I went to a different hospital this time since I’m really unhappy with my old one. I had a great experience and my technician was wonderful! Wish I would’ve made the switch sooner. I even had a small private waiting area. Definitely made it feel less clinical.

Posted in Mammogram, my day to day, spoonie, Waiting Room Blues | Leave a comment

Flu vaccine

Eventhough I got the flu twice last year, I went and got my flu shot Monday! Hopefully this years strains are covered🤞 Every year the H1N1 is covered my lymph nodes are swollen and hurt in the arm I got the shot. I know it’s my body reacting.

Posted in my day to day, spoonie | Leave a comment

Traveling

I’m on vacation and will be on a plane for hours. Last time, for the first time ever, I got land sickness really bad. This time I’m trying the seaband. A few friends recommended it. Hopefully it works! My fibro pain is pretty bad today. Not looking forward sitting in an uncomfortable position for 9 hours 😫

Posted in Fibromyalgia, my day to day, spoonie | 1 Comment

Vitamin B12 injections

Gave myself my second Vitamin B shot. This time I took someone’s advice and twisted my skin while injecting. It distributed so much better than without twisting the skin!

Posted in my day to day, spoonie, Vitamin B12 deficiency | Leave a comment

Hematology follow up

I had my follow up visit last Friday with my Hematologist. Ferritin is now in the 500 range👍 Even with the shots I got weekly,my Vitamin B12 is just on the low end of the normal range and so is my Vitamin D. That’s with taking 50000U ones a week. I’m suppose to continue taking the Vitamin D and give myself Vitamin B12 shots every 2 weeks for at least the next 3 months. I have another follow up appointment then.

Posted in Uncategorized | Leave a comment