Fake diagnosis ?

( possible triggers )

I got very upset the other day. Somehow I came across a web page that states, fibromyalgia is not a diagnosis! It listed a lot of reasons, why there is not such thing as fibromyalgia. Also it was stated, that any pain can be called fibromyalgia and any pain can cause sleep problems and exhaustion. Apparently patients with fibro only hang on to the diagnosis to make themselves belief it’s not a life style issue. It went on and on. Looks like I should try to find something else that’s wrong with me, because I can’t have fibro….

I have to say, reading this hurt! I don’t understand how someone that doesn’t even have fibro, is going through so much effort to be hurtful to a lot of sufferers! Apparently I only have fibro because I seek attention, like to whine about it and don’t want to work.

Why in the world would I make up an illness that is ruining my life? I don’t seek attention, I’m actually pretty far from it. I don’t talk to anyone about my illness, except my husband, son and best friend. I don’t feel like I’m whining about it either. I have this blog to help me cope with it and let other fibro sufferers know, they’re not alone. If I come across as whiny, I apologize! Don’t want to work? Well, actually I loved my job. I was gutted that I had to quit working due to the pain and exhaustion. I will start looking for another job at some point this year. Hopefully I’ll find something I’m able to do! Kudos to everyone that has fibro and is working.

Why do I feel the need to explain myself? Well, because it really bothers me, reading things like this. Who knows what this could do to an unstable person that is dealing with this illness? A lot of fibromyalgia sufferer have committed suicide due to the debilitating pain day in day out.

It takes all I’ve got to make it through the day, especially emotional! I feel worthless most of the time and guilty for being a burden an my family. They tell me I’m not, but I can’t help feeling like this. So, reading all these negative things, is extremely hard and makes me feel even worse. A few people on my husband’s side of the family believe, fibromyalgia isn’t real. They don’t know I’m ill. I don’t need the drama and the degrading talks and I distant myself from them.

***************

Vor ein paar Tagen hab ich mich wirklich aufgeregt. Zufällig bin ich auf  eine Webseite gestossen, die besagt, daß Fibromyalgie keine Diagnose ist! Dort wurden etliche Gründe aufgezählt, warum es Fibromyalgie garnicht gibt. Es war auch die Rede davon, daß jeder Schmerz Fibromyalgie genannt werden kann und jeglicher Schmerz Schlafprobleme und Erschöpfung verursacht. Anscheinend klammern sich Fibromyalgiepatienten nur an diese Diagnose um sich selbst glaubhaft zumachen, daß es nichts mit ihrer Lebensweise zu tun hat. So ging das immer weiter. Es sieht also so aus, als ob ich mir eine andere Krankheit suchen sollte, den Fibromyalgie kann ich ja nun nicht haben….

Ich muß gestehen, daß es unheimlich verletzend war, dies zu lesen! Ich verstehe einfach nicht, wie jemand der nicht einmal Fibro hat, sich soviel Mühe macht Patienten die and Fibro leiden so zu verletzen. Anscheinend habe ich Fibro nur, weil ich Aufmerksamkeit suche, gerne darüber jammer oder nicht mehr arbeiten will.

Warum um himmelswillen würde ich mich mir eine Krankheit ausdenken, die mein Leben ruiniert? Ich suche nicht nach Aufmerksamkeit, ganz im Gegenteil. Ich rede mit niemandem außer meinem Mann, meinem Sohn und meiner besten Freundin darüber. Ich denke auch nicht das ich jammer. Ich habe diesen Blog, damit andere Fibromyalgiererkrankte sehen, daß sie nicht alleine sind. Sollte es als jammern rüberkommen, entschuldige ich mich. Ich will nicht arbeiten? Ich hab meinen Job wirklich gerne gemacht und war am Boden zerstört, als ich wegen der Schmerzen und der Erschöpfung aufhören musste. Irgenwann diese Jahr werde ich mich wohl wieder nach einem Job umsehen. Hoffentlich finde ich etwas das ich machen kann. Kudos and alle die trotz Fibro arbeiten!

Warum ich das Gefühl habe mich erklären zu müssen? Es nervt mich einfach so etwas zu lesen. Wer weiß was passiert, wenn eine phsychisch labile Person die an dieser Krankheit leidet, so etwas liest? Leider begehen sehr viele, die an dieser zermürbenden Krankheit leiden, Selbstmord.

Ich brauche täglich alle Kraft die ich habe um durch den Tag zu kommen, besonders emotional! Die meiste Zeit fühle ich mich wertlos und schuldig, eine Last für meine Familie zu sein. Die sagt mir natürlich das es nicht so ist, aber ich denke trotzdem so. Das lesen solch negativer Dinge ist wirklich nicht leicht und bewirkt nur, daß ich mich noch schlechter fühle. Einige Mitglieder der Familie meines Mannes denken auch das Fibromyalgie nicht echt ist. Sie wissen nicht das ich krank bin. Ich brauch das Drama und dieses herabwürdingende Gerede nicht und hab mich von ihnen sehr distanziert.

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9 Responses to Fake diagnosis ?

  1. Tessa says:

    I read recently that they will be adding Fibro to the DSM or whatever those books/reports are called. That makes it a real disease or disorder. Don’t read people who trigger you! Another sufferer of this supposed non-existent disorder and my GP doesn’t believe either.

    Liked by 1 person

  2. snowdroplets says:

    It’s terrible to read something like that. So untrue!!

    Liked by 1 person

    • snowdroplets says:

      Sorry! I got interrupted before I could write the rest of what I wanted to say 🙂 I was at the chiropractor. Feeling better now! Anyway, I am sorry that you had to read that kind of nonsense. It’s so harmful to have myths like that being spread around. I think that more and more, quality information is being shared about fibromyalgia and it’s being taken more seriously, recognized for the serious medical condition it is. I think our big challenge with this myth is that there’s no obvious visible sign for fibromyalgia, no test result you can point to, and no explanation for it’s cause. I also think it has to do with the higher rate among women. I think that it has been easier to dismiss illnesses like that that more frequently affect women. I believe that one day research will reveal what fibromyalgia sufferers already know – that it’s all too real and difficult – as they explain the mechanisms or cause of the condition. I’m also hopeful there will be better treatments in the future – maybe even prevention and a cure!

      Liked by 1 person

      • suomi571 says:

        Glad your’re visit at the chiropractor got you feeling better 🙂 Yes, I think fibro isn’t seen as a real illness, is because there are no visible signs. I also think it has something to do because mostly women are affected so it’s easy to just add it to the “it’s all in your head” stereotype. Sad, really!

        Like

  3. I’ve had Fibro for way too many years. When I was first diagnosed with it, people informed me that it was a fake disease. I found that less than helpful. I don’t ever talk about it in my daily life – most of my wonderful family are not supportive. I don’t take medication but do some natural health things. I wish you well – and don’t listen to the ill-informed.

    Liked by 1 person

  4. suomi571 says:

    Thank you! It’s terrible when your own family isn’t supportive. That’s why I distance myself as much as possible from my in-laws. My family is understanding and that helps. Wishing you a low pain day!

    Like

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